“How much he cared about all people living with rare diseases is underpinned by his volunteer work”“During his time as CEO of Mukoviszidose e.V., the German Cystic Fibrosis (CF) Association (2002 – 2014) and Managing Director of our research affiliate, Mukoviszidose Institut GmbH (2006 – 2015), I got to appreciate Andreas Reimann. I am a father of a son living with CF and I am grateful to what Andreas has contributed to the lives of CF-patients and their beloved ones. Andreas could combine a human attitude and professionalism to the benefit of the patients. He helped to foster the association to an even higher reputation, both nationally and internationally. He managed to raise awareness in the public and fostered support in health-policy for the objectives of CF-patients. This again helped to bring CF into the focus of research and medical care. Thanks to his prudent financial management and his good relationship with major donors, the association could raise sufficient funds to foster research and therapy and to promote important international projects. Andreas always had an impact on patients and relatives in mind when making research and care a priority of our activities. He also encouraged patient activists in the association and co-operated with pharmaceutical companies on eye-level always keeping in mind that transparency and independence of the patient organisation must never be compromised with.

How much he cared about all people living with rare diseases is underpinned by his volunteer work as vice-president and later on as president of ACHSE, the German umbrella organisation for rare diseases.

If one day we manage to overcome CF, Dr. Reimann has contributed his share. He reminded decision-makers in Germany on their responsibility on the life of patients living with severe chronic diseases.”