The European Alliance for Newborn Screening in Spinal Muscular Atrophy (SMA NBS Alliance) was founded in 2020 by SMA Europe and a group of diverse stakeholders. admedicum has been there since the beginning acting as the Alliance Secretariat to support the work of SMA Europe with academia, other patient organizations, pharma companies, and testing companies to reduce the time it takes for a child born with spinal muscular atrophy (SMA) to be diagnosed. admedicum believes that by working together with all the stakeholders interested in a health condition you can create meaningful and sustainable change.
This is exactly what the SMA NBS Alliance is doing by creating European awareness of the need for SMA newborn screening and momentum towards accelerated implementation of newborn screening for SMA which can be seen in a steadily increasing number of countries in Europe. (See the Map for a full view).
The EURORDIS Company Award for Patient Engagement recognises the collaborative effort of the companies involved in the European Alliance for Newborn Screening in SMA to ensure that newborn screening programmes in all European countries diagnose all newborn children with SMA.