Empowering Those Living with Chronic Disease

At admedicum, we recognize the unique insights that come from living with chronic diseases and conditions.

Your experiences are invaluable, and we’re committed to leveraging this deep patient knowledge to drive meaningful advances in healthcare.

Our Journey with Patients

Our team at admedicum has a rich history of collaborating with patient organizations, championing gender balance, and embracing diversity at every step.

Our approach is rooted in genuine empathy and a deep understanding of the challenges faced by those living with disease.

"admedicum colleagues have genuine empathy and understood the problems of living with the disease. They understood and respected our independent position. If felt like we knew each other already for years and everyone shared a mutual respect."

Emma Margarete Reil

Chairperson, Sklerodermie e.V.

How we partner with patients

Your voice leads the way. Our process starts with listening to you to ensure patients are at the center of everything we do.

Starting point: a Need or a Question

Identifying needs and questions

Every project begins with a need or question. We dive into background research and standards of care and strive to capture the essence of living with the disease through comprehensive desk research. Often when working in a new disease area, our first call is to a patient expert or organization from our network. 

Engaging with Patient Organizations

Engaging with Patient Organisations

Our first step is to engage with patient organizations, listening and learning from their insights. We value their feedback and use it to shape our projects.

Orphanet along with EURORDIS and PFMD’s Synapse platform are key resources for identifying relevant patient organizations, who then help us find the right people to work with, whether they are expert patients or representative members of their community.

Exploring online communities and online group moderators

Exploring online communities and online group moderators

When patient organizations are not available, we turn to disease discussion groups on social networking platforms to gather diverse perspectives. Our commitment to gender balance and diversity is unwavering in these efforts.

Co-Creating Solutions

Co-Creating Solutions

Our collaborations take many forms, from developing patient-focused materials to conducting surveys and focus groups to establishing patient advisory boards.

Our case studies illustrate the breadth of our work with patients.

Working with patient organizations

While we often work with pharmaceutical and biotech companies, our work also extends to patient organizations in multi-stakeholder alliances. We are happy to lead these alliances, whether as secretariat or project manager, as exemplified by our role in helping create and serve as Secretariat of the European Alliance for Newborn Screening in Spinal Muscular Atrophy for three years.

Another is the Alliance for Pulmonary Hypertension where we help the volunteer-led team organize webinars and maintain their knowledge sharing platform.

Join us as a patient expert

We invite you to bring your expertise and insight to admedicum. Whether you’re deeply involved in your patient community, a EUPATI Fellow, or have in-depth knowledge of your disease, your voice is critical to our mission. Together, we can create solutions that not only benefit patients worldwide, but also influence the healthcare industry’s approach to patient care.

Let’s make a difference together.

Join us in creating a future where healthcare is truly patient-centered. If you’re ready to make a difference and explore partnership opportunities, we want to hear from you.

As an integral part of our collaborative network, you would have the opportunity to directly contribute to the creation of innovative, patient-focused products and services that could ultimately benefit patients around the world.

With your unique understanding of patient needs, you have the potential to significantly impact the healthcare industry’s approach to patient care.

Start the conversation with Robert at and let’s embark on this transformative journey together. 

Robert Pleticha

International Senior Patient Engagement Manager

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