FOR PATIENTS

We are committed to working with the community of people living with chronic illnesses and diseases

We understand the value of patient knowledge and are skilled at tapping into it.

"admedicum colleagues have genuine empathy and understood the problems of living with the disease. They understood and respected our independent position. If felt like we knew each other already for years and everyone shared a mutual respect."

Emma Margarete Reil

How we engage with patients

People living with the disease or condition are in the driver’s seat, and we start by listening to them and involving patients in everything we do.

Starting point: a Need or a Question

It starts with a specific need or question that needs to be answered. We begin by reading background literature and standards of care if available. We try to understand the basics of the disease and living with it as best as we can from desk research.

Contacting Patient Organisations

We reach out to patient organizations first, to listen and learn from them, and to inform them of the project we are planning. We receive feedback and adapt accordingly. Orphanet is an excellent source of information about patient organizations.

Patient organizations usually identify the best people to work with, whether it is the patient representatives themselves who have an expert patient profile, or a more “typical patient” from their membership.

Contacting other online communities

If there is no patient organization for the condition or disease, we check other online communities such as Facebook or other online community platforms to find people who can add their diverse voices to our project. We always strive for gender balance and prioritize diversity.

Sharing the Outcome

We co-create and collaborate with patients and industry in a variety of ways. A few examples of potential collaborations that admedicum typically works on with patients includes co-creation and review of patient-directed materials, plans for surveys (interviews and online), focus groups, patient advisory boards in clinical development. See our Case Studies for further examples.

Our work with patient organisations

Though many of our clients are pharmaceutical and biotech companies, we also work for patient organizations in multi-stakeholder alliances.

We believe in the power of groups of people to achieve a shared goal, we feel comfortable guiding those Alliances through our role as Secretariat or project manager.

One example is European Alliance for Newborn Screening in Spinal Muscular Atrophy where admedicum acted as the Secretariat and coordinated the activity while managing the partners.

Another is the Alliance for Pulmonary Hypertension where we help the volunteer-led team organize webinars and maintain their knowledge sharing platform.

Get involved as a patient expert with admedicum

You can collaborate with admedicum in a variety of ways, from acting as a patient expert to sharing your patient association’s challenges so that we can work together to solve them.

Are you a patient expert with in-depth knowledge of your specific condition, actively involved in your patient community, or perhaps a EUPATI Fellow?

At admedicum, we understand the profound value of your insights and experiences, and we are always eager to incorporate your voice into our work. Our greatest passion is learning from patients like you, partnering with you to harness and share your expertise with healthcare professionals, and co-creating solutions that drive both patient benefit and industry success.

As an integral part of our collaborative network, you would have the opportunity to directly contribute to the creation of innovative, patient-focused products and services that could ultimately benefit patients around the world.

With your unique understanding of patient needs, you have the potential to significantly impact the healthcare industry’s approach to patient care.

We would be honored to explore potential partnership opportunities with you to create shared value and further enhance our patient-focused solutions. Please don’t hesitate to contact us and start this important dialogue – together we can shape a patient-centered future in healthcare.

Contact Robert to start the discussion robert.pleticha@admedicum.com

Robert Pleticha

International Senior Patient Engagement Manager